The Birth Defect Research for Children Web site has a great Family Support Center page with links to support groups for dozens of birth defects. If you have a child with a problem, you should check out this site. Here’s their description:
Who We Are
Birth Defect Research for Children, Inc. (BDRC) is a 501(c)(3) non-profit organization that provides parents and expectant parents with information about birth defects and support services for their children. BDRC has a parent-matching program that links families who have children with similar birth defects. BDRC also sponsors the National Birth Defect Registry, a research project that studies associations between birth defects and exposures to radiation, medication, alcohol, smoking, chemicals, pesticides, lead, mercury, dioxin and other environmental toxins.
Family Support Center
In our family support center, you will find links to birth defect support organizations and chat rooms as well as national information resources.